So things are moving fast.
Dr. Farzad Mostashari on Sunday at HIMSS 2015 called for a “day of action” in response to the changes in Meaningful Use Stage 2. Among the lowlights for patient advocates like Mostashari: instead of requiring 5 percent of patients to “view, download or transmit” to a third party their own medical data through a portal or personal health record, just one single patient will have to do so during the reporting period.
Hours after Mostashari’s call, patient advocate Regina Holliday, former Department of Defense Chief Technology Officer Peter Levin and Mostashari, the former national health IT coordinator, were huddled in the main entryway of McCormick Place in Chicago talking strategy.
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Holliday emerged from the scrum with this announcement: the tentative date for the day of action is July 4 and they’re calling it a Data Independence Day.
“We want every patient, nationwide on the Fourth of July to ask for their data,” she said.
“Why don’t we look at the wonderful history lesson of civil rights,” she said. When everyone was encouraged to vote, some states enacted barriers and loopholes to make it harder to register to vote.
“We are going to show that same experience is happening to patients” when it comes to data, Holliday said.
She outlines all the plans in the video below, in which she also alludes to a run for Congress.
Things are still fluid though – and expect more: from protests at CMS meetings to events around Health Datapalooza. So stay tuned.
