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Topic: Health Data

Published in partnership with the Health Data Consortium. The Health Data Consortium is a collaboration among government, non-profit, and private sector organizations working to foster the availability and use of health data to drive innovations that improve health and health care.

Expanding tools for clinical research, rare disease network gets Sanofi award

December 13, 2012 6:47 am by | 0 Comments

A patient-centric tool to provide a virtual research network for rare diseases to improve clinical trial recruitment has taken the top prize in an innovation challenge from Sanofi US.

Registries for All Diseases will get $300,000 to create a comprehensive, crowdsourced, cross-disease registry to help accelerate translational research for more than 1,000 diseases. It will also work with mentors at Sanofi to advance its tool. It was one of four finalists in the Collaborate Activate Innovation Challenge seeking to disrupt clinical trial research and healthcare.

One requirement of the competition was collaboration between non profit organizations. Among the groups on Registries for All Diseases are  Genetic Alliance, CFIDS Association of America, National Psoriasis Foundation, and the Inflammatory Breast Cancer Research Foundation.

The competition began earlier this year at the Partners in Patient Health Forum in Washington, DC. The challenge required two or more groups to collaborate in order to qualify for the contest and designed to promote sharing of complementary resources among partnering organizations. It’s part of the Bridgewater, New Jersey-based drug developer’s initiative Partners in Patient Health, in which the company has partnered with the advocacy community by connecting people, ideas, and solutions to advance patient health.

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It is one several ways companies are trying to make the clinical trials more efficient by making greater use of big data, remote monitoring and finding different ways to collaborate. Groups are also increasingly trying to create ways to make these approaches more patient centric to generate better patient outcomes.

 

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Stephanie Baum

By Stephanie Baum

Stephanie Baum is the East Coast Innovation Reporter for MedCityNews.com. She enjoys covering healthcare startups across health IT, drug development and medical devices and innovations deployed to improve medical care. She graduated from Franklin & Marshall College in Pennsylvania and has worked across radio, print and video. She's written for The Christian Science Monitor, Dow Jones & Co. and United Business Media.
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Health Data Consortium

Published in partnership with the Health Data Consortium. The Health Data Consortium is a collaboration among government, non-profit, and private sector organizations working to foster the availability and use of health data to drive innovations that improve health and health care. More information on the Health Data Consortium can be found at HealthDataConsortium.org.


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