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Topic: Health Data

Published in partnership with the Health Data Consortium. The Health Data Consortium is a collaboration among government, non-profit, and private sector organizations working to foster the availability and use of health data to drive innovations that improve health and health care.

Group sees health record banks as best way to share EHR information, not HIEs

March 13, 2013 10:43 am by | 9 Comments

Cloud EHRHealth information exchanges in which electronic medical records can be transmitted between providers has been the most challenging requirement to prove meaningful use as spelled out in the HITECH Act. So much so that the Office of National Coordinator for Health IT, part of the Department of Health and Human Services, issued a request for information last week to get ideas that would accelerate electronic health record exchange between providers.

An article published in the Journal of the American Medical Association this week argues that health information exchanges are unworkable and takes the view that cloud-based health record banks are the best way forward.

William Yasnoff, one of the three authors of the article, is the founder and managing partner of National Health Information Infrastructure — a consulting firm that helps communities and organizations develop health information infrastructure systems and is a member of the Health Record Banking Alliance. He says if electronic health records are banked in communities around the country, it would create a more scalable way for patients to share their information that makes sense. He compares the idea to credit reports that can be updated by each bank that receives (or doesn’t receive) monthly credit card payments from consumers. Patients’ electronic health records would be maintained in cloud-based banks in communities across the country although their local provider would have their own copy. If you move, you could have your records transferred to a bank that’s more convenient.

The request for information stated the ONC is seeking input “on a series of potential policy and programmatic changes to accelerate electronic health information exchange across providers as well as new ideas that would be both effective and feasible to implement. To further accelerate and advance interoperability and health information exchange beyond what is currently being done through ONC programs and the EHR Incentive Program, HHS is considering a number of policy levers using existing authorities and programs.” It listed April 21 as the cut-off date for proposals.

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“The problem is we have a crisis in healthcare and we need electronic records to improve quality and reduce cost and to effectively reform [the] system and to monitor what reforms we’re doing so we are not causing harm, so it is extremely urgent that we do this right,” observed Yasnoff in an interview with MedCity News. “The ONC has essentially admitted defeat.”

Yasnoff said he is not opposed to the idea of health information exchanges, but the way they are currently structured is faulty. Ultimately patients should be in control of the health records. He pointed out that health information banks could be joined up with the Blue Button initiative, particularly the mobile Blue Button solution.

Yasnoff highlighted several health banks in operation. In the U.S., Microsoft runs one called Health Vault; Washington state has been conducting pilot programs.  Oregon has set one up too. There is also a consortium of a practices called Dossia. Outside the U.S., there are health record banks in the UK, Germany and in Australia. They have not been without their own set of problems, particularly in Australia where the shift to an electronic record system has created a lot of anxiety and is experiencing growing pains.

The problem with health information exchanges in their current form, says Yasnoff, is that they make the assumption that you can get information about any one patient from any provider whenever you want it. But when you go to a hospital and it needs to contact another provider to have the patient’s records sent, you think of it as just pushing a button and it’s transmitted electronically. “But then if you think in that kind of system,  every organization has to be able to talk to every other organization where the patient has received treatment. Each one has to do a search for the patient’s information and it’s inefficient”

The Direct Project has helped providers set up secure emails to send requests for prescriptions and tests to honor the goals of the meaningful use provisions spelled out in the HITECH Act. But providers have also been reticent about exchanging patient information. There is also the great interoperability problem between providers using different electronic health record vendors, which was a significant focus of the HIMSS conference. In a proposal to both ease the problem and to make them more competitive with market leader Epic, a group of health IT vendors led by McKesson and Cerner formed the CommonWell Alliance to create a better way to track patients in the system

How will health record banks be monetized? Yasnoff said there could be a range of accounts from basic accounts that would be free and would be financed by accounts that had extra level of service such as apps that would be relevant to their needs. He suggested having convenience apps such as letting loved ones know if you have been admitted to the hospital for an emergency or loved ones could get it on your behalf. Account holders could also pay extra to be notified of clinical trials.

Yasnoff’s argument that health record banking would put more control of patient records in consumer hands will resonate with supporters of the e-patient initiative. But the amount of investment that has already been allocated to building health information exchanges would be difficult to simply give up and walk away. We seem to be at a crossroads for figuring out the best way to share patient information and it will be interesting to see where we are come late April.

Copyright 2014 MedCity News. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

Stephanie Baum

By Stephanie Baum

Stephanie Baum is the East Coast Innovation Reporter for MedCityNews.com. She enjoys covering healthcare startups across health IT, drug development and medical devices and innovations deployed to improve medical care. She graduated from Franklin & Marshall College in Pennsylvania and has worked across radio, print and video. She's written for The Christian Science Monitor, Dow Jones & Co. and United Business Media.
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9 comments
mhunter
mhunter

To succeed, health record banks will have to address malpractice liability.  As long as physicians and practices bear the full burden of liability, they have little incentive to trust the data from any system or provider other than their own.

bgaustin
bgaustin

Cloud-based health record banks vs. health information exchanges %s %siwW \/%sm%sthIT

Planning Room
Planning Room

The federal government is updating the National Health Information Technology Strategic Plan. The Cornell e-Rulemaking Initiative (CeRI) has partnered with the Office of the National Coordinator for Health Information Technology (ONC) to facilitate public participation in these efforts. CeRI’s participation website (http://planningroom.org/) will provide a forum for understanding thegoals and strategies for development of e-health records, health information exchanges and consumer health IT products.  It makes it easier for a broad range of interested participants – doctors, patients, caregivers, other healthcare providers and developers – to have their say. If you have any suggestions or comments relating to the adoption of e-Health practices in the US healthcare system, please join the discussion soon when the site launches athttp://planningroom.org/

BobbyGvegas
BobbyGvegas

%s This HRBA guy is just another player trying to belly up to the HIE bar. See %sc%sh%sS%sHIE

StephLBaum
StephLBaum

@BobbyGvegas But given that the ONC is looking for proposals, it seems like an idea worth reviewing. What's your argument against it?

StephLBaum
StephLBaum

@BobbyGvegas I take your point. I think many are trying to get a slice of the HIE action and it's clear HRBs aren't problem free

BobbyGvegas
BobbyGvegas

%s Not exactly "against" it at this point, just feel it to be way light on details, after reading their "white papers." %s

BobbyGvegas
BobbyGvegas

%s Stephanie, it may not be "clear," (given the lack of proposed Ops specifics), but it's a safe bet. %s %s %s %s

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