Dr. Michael Robinson is a retired physician and pharmaceutical executive, a person living with Motor Neuron Disease, and an avid user of the StoryMD platform. He spent 15 years in the pharmaceutical industry, retiring following his ALS diagnosis. Dr. Robinson then became a relentless advocate for the ALS community, serving on several advocacy committees and advisory boards. He focuses on improving clinical trial design, expanding equitable access to new therapies, and recently published a qualitative study of the Revised Amyotrophic Lateral Sclerosis Functional Rating Scale.
I lived for nine years with ALS while navigating a healthcare system that routinely obscured my own medical reality. But I know that pain is only amplified for individuals without medical expertise like mine.