As part of an effort by Biogen idec to explore ways to use wearables with MS patients to help physicians quantify patient activity, it recently completed a study of 250 patients in collaboration with PatientsLikeMe, Naomi Fried, vice president of medial information and innovation at Biogen, referenced the study as part of a keynote presentation […]
About 18 months ago, PatientsLikeMe developed its OpenResearchExchange to connect researchers designing clinical trials with patients to get their feedback on health measures. Its latest pharmaceutical partner Actelion Pharmaceuticals wants to use the exchange to collect patient insights for a rare condition — a form of non-Hodgkins lymphoma that affects the skin, according to a […]
Munck Wilson Mandala Partner Greg Howison shared his perspective on some of the legal ramifications around AI, IP, connected devices and the data they generate, in response to emailed questions.
Patients don’t much care for the way clinical trials are designed. That was one of the findings of a patient-centered survey that reinforced PatientsLikeMe’s plan to roll out a group of collaborative programs. They are designed to make it easier for pharmaceutical companies and patients to work together and develop more mutually beneficial trials. PatientsLikeMe […]
http://www.youtube.com/watch?v=cfUTG7YnijE If consumers knew the impact their health data could have on advancing scientific research, would they be willing to donate it? That’s the goal of a healthcare marketing campaign by PatientsLikeMe. It’s launched a series of public service announcements through social media channels such as YouTube and Facebook to remind people the value of […]
One day monitoring the progression of Parkinson’s disease could be as simple as a phone call. At least that’s the idea of a collaboration between PatientsLikeMe and Sage Bionetworks, which promotes innovations in personalized medicine. They are looking for people with Parkinson’s disease to participate in a voice analysis study with the caveat that patients […]