There’s been plenty of talk about patient-centeredness in healthcare, but the experience too often remains provider-centric. For an hour on Friday at least, the focus of the weekly health IT social media tweet chat (#HITsm) was squarely on the patient.
Participants covered five topics in an hour:
With the Rise of AI, What IP Disputes in Healthcare Are Likely to Emerge?
Munck Wilson Mandala Partner Greg Howison shared his perspective on some of the legal ramifications around AI, IP, connected devices and the data they generate, in response to emailed questions.
https://twitter.com/2healthguru/status/634756237821878273
We will focus on the first two from this chat, which was moderated by Melody Wilding, manager of social innovation at ConsumerMedical, a Pembroke, Mass.-based company that helps patients and caregivers navigate the convoluted U.S. healthcare system.
Initial discussion focused on crowdsourcing patient experience through social media.
CirrusMD here. Great topics. Patient experience is a big part of how we can #savethehipsters. #hitsm
— CirrusMD (@CirrusMD) August 21, 2015
A Personalized Approach to Medication Nonadherence
At the Abarca Forward conference earlier this year, George Van Antwerp, managing director at Deloitte, discussed how social determinants of health and a personalized member experience can improve medication adherence and health outcomes.
Nice reference to the “Save the Hipsters” video from Rocky Mountain Health Plans in Colorado, one we had a lot of fun with last month.
Twitter obviously is global, and this chat included at least one participant from Australia, informatics specialist Dr. George Margelis.
T1: The more data the better, allows us to find new patterns faster #hitsm
— georgemargelis (@georgemargelis) August 21, 2015
His statement wasn’t universally well-received, though.
https://twitter.com/2healthguru/status/634759996266422272
Others saw the potential of social media as a source of information on the patient experience.
T1: It's a great way to see how patient experience evolves outside of the walls without a ton of resources. #HITsm
— Sarah Bennight (@sarahbennight) August 21, 2015
Patient experience data plays straight into behavior change. Know the experience, better drive the change #HITsm
— Fred Goldstein (@fsgoldstein) August 21, 2015
https://twitter.com/caretothepeople/status/634759581818822656
A1: Without patients, there is no data, no medicine. Delve into what patients know about themselves for treatment insights #HITsm
— HESA Online (@hesaonlineinfo) August 21, 2015
@caretothepeople BTW like #ptexp hashtag, hope becomes widely adopted #HITsm
— Chuck Webster MD, MS AI, MS Systems Engineering (@wareFLO) August 21, 2015
Engaged patients are invested in a better outcome, hopefully faster dx, treatment, & invasive tests. #HITsm https://t.co/bofbFv7N63
— HESA Online (@hesaonlineinfo) August 21, 2015
Moving on to the second topic, patients are generating lots of data, through wearable devices, mobile apps and social media, among other sources. But are healthcare organizations integrating this information into patient care?
Erin Wold, a marketing manager for Lexmark International subsidiary Perceptive Software, had an easy answer:
https://twitter.com/ErinEWold/status/634760995035049985
https://twitter.com/ErinEWold/status/634762482234601472
Wold did find some agreement.
Not aware of #PGHD from public #socialmedia platforms integrated into #EHR workflow or portals (yet). Private networks, maybe. #HITsm
— Mandi Bishop (@MandiBPro) August 21, 2015
T2: IMO #patient generated data integrated only at point of care, sadly. Unless you count online appt scheduling w/ character limit! #hitsm
— JanetCabibbo (@JanetCabibbo) August 21, 2015
She also saw some pushback, in the form of a tough question from a journalist.
https://twitter.com/ErinEWold/status/634761913512144896
Dr. Charles Webster, a consultant in Washington, D.C., is all about physician and patient workflow. Changes to workflow would allow the integration of patient-generated data, he said.
Created this graphic of how social media activity streams turn into structured workflows couple years ago. #HITsm T2 pic.twitter.com/9A5mhAlaDH
— Chuck Webster MD, MS AI, MS Systems Engineering (@wareFLO) August 21, 2015
Come to think about it, several other participants discussed workflow, whether they realized it or not.
T2. Depends on definition of social. Private, text-based interactions with doc can become part of EHR. Self-documenting, no codes. #hitsm
— CirrusMD (@CirrusMD) August 21, 2015
T2: I have yet to see a Dr ask or care about my app and wearable data. Or really anything I say. "Let's look at your labs again" Grr #hitsm
— Sarah Bennight (@sarahbennight) August 21, 2015
Perhaps clinicians and healthcare organizations tune out patient social media because people tend to be negative?
@michnoteboom Social media feels like great channel 2 provide neg feedback. Therapeutic pathway, How often SM feedback constructive? #HITsm
— Gus Gilbertson (@gusgilbertson) August 21, 2015
Some also questioned Webster.
#HITsm T2: Do we need social media to integrate with clinical workflows? I don't think so.
— Chad Johnson (@OchoTex) August 21, 2015
Really? You don’t want your portal to tweet “I just got a colonoscopy at X clinic?” 😉 @OchoTex #HITsm https://t.co/z1BeVKyLMe
— Greg Meyer (@Greg_Meyer93) August 21, 2015
@caretothepeople not all PGHD needs to be part of the record. OK for just pt to improve self. Social media not nec accurate. #HITsm
— Chad Johnson (@OchoTex) August 21, 2015
@georgemargelis linking patient-specific, condition-specific symptoms back into clinical record seems particularly problematic #HITsm
— Chuck Webster MD, MS AI, MS Systems Engineering (@wareFLO) August 21, 2015
But it apparently can be useful for people with rare diseases, particularly in cases where so little is known about their conditions.
https://twitter.com/caretothepeople/status/634762587197063169
The same goes for mental health.
https://twitter.com/onlyoneschlyer/status/634764201999908864
At one point, the conversation veered off into the realm of online dating.
@Greg_Meyer93 @OchoTex No but think of Tindr posts "I tested clean today….wanna go out?" 😉 #HITsm
— Sarah Bennight (@sarahbennight) August 21, 2015
@Greg_Meyer93 New start up 😉 HeathyDate. Dating app integrated with your health and genetic data. Yikes!! #HITsm
— Sarah Bennight (@sarahbennight) August 21, 2015
This is about "patient" engagement – your mind is on the wrong engagement! #HITsm @sarahbennight https://t.co/0kPH7dQw5o
— Michelle R. Noteboom (@michnoteboom) August 21, 2015
Pipe directly from your EHR to your dating profile. That’s patient engagement in action! 🙂 #HITsm https://t.co/flPAzPYwdW
— Greg Meyer (@Greg_Meyer93) August 21, 2015
I’m getting scenes from Gattaca going through my head now. #HITsm https://t.co/85YyVLYTBD
— Greg Meyer (@Greg_Meyer93) August 21, 2015
https://twitter.com/2healthguru/status/634767269474762753
But Dr. Eric Topol doesn’t want to talk about “Gattaca” in healthcare. He told us so last week. Such is the nature of Twitter. Anything goes.
Photo: Bigstock
